Virtual Patient Conference
Canadian Patient Parenteral and Enteral Nutrition Alliance
Held on: Thursday, October 7, 2021, 4:00pm - 7:00pm ET - Virtual via Zoom. Free registration
Description:
The 1st annual CPPENA patient conference was held virtually on October 7th 2021. This patient conference provided an opportunity for education and networking for patients, caregivers, and families living with home nutrition support. It focused on providing education regarding medical management and practical strategies for coping with life on home parenteral nutrition (HPN). Current work by CPPENA, including this virtual conference, will be focusing on adult home parenteral nutrition (HPN) patients, with plans in the future to include pediatric HPN and adult/pediatric home enteral nutrition (HEN) patients. Download Flyer
Conference Learning Objectives:
- Recognize factors that can influence quality of life on HPN.
- Relate experiences from other HPN patient organizations.
- Identify new treatments and approaches to medical management of intestinal failure with GLP-2 analogues.
- Practice effective management of daily life with a central venous catheter (CVC).
- Employ successful strategies to manage travel and HPN.
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Agenda
Draft agenda - subject to change. Sessions delivered in English via Zoom. All times ET.
4:00pm- 4:15pm ET - Introductions
Speakers - CPPENA Co-Chairs
Leah Gramlich, MD, FRCPC - Faculty of Medicine, University of Alberta
Vanessa Lewis, RD, MHA - BC Home Parenteral & Enteral Nutrition Programs
CLICK HERE for Speaker Bios
4:15pm- 5:00pm ET - Keynote Address: Intestinal Failure - Considering Quality of Life
Speaker:
Marion Winkler, PhD, RD, LDN, CNSC
Professor of Surgery (Teaching Scholar) Brown University Alpert School of Medicine and Surgical Nutrition Specialist in the Department of Surgery and Nutritional Support Service at Rhode Island Hospital
CLICK HERE for Speaker Bio and Session Details
5:00pm - 5:30pm ET - The role of the Patient Association – making all the right connections
Speaker:
Carolyn Wheatley, Chair PINNT, UK support & advocacy groups for people on HAN
Former executive officer of BAPEN, current council member; Patient Representative
CLICK HERE for Speaker Bio and Session Details
5:30pm - 5:45pm ET- Break
5:45pm - 6:05pm ET - New Treatments for Intestinal Failure: GLP2 (Revestive) - Provider and Patient experiences
Speakers:
Leah Gramlich, MD, FRCPC - Faculty of Medicine, University of Alberta and TBC
Karen O Savory - A Patient's Perspective
CLICK HERE for Speaker Bios and Session Details
6:05pm - 6:25pm ET - Central Venous Catheter Care and Maintenance
Speaker:
Olivia Saqui, RN, BScN, MAEd
Clinical Nurse Specialist
CLICK HERE for Speaker Bio and Session Details
6:25pm - 6:45pm ET - Traveling with Intestinal Failure and Parenteral Nutrition
Speakers:
Gerry Kimmel - British Columbia HPN Program
Nicole L Anderson, B.Sc, RN - Alberta HPN Program
Adela Delgado, B.Sc, RD - Northern Alberta HTPN Program (Adults)
CLICK HERE for Speaker Bios
6:55pm - 7:00pm ET - Closing Remarks
Speakers - CPPENA Co-Chairs:
Leah Gramlich, MD, FRCPC - Faculty of Medicine, University of Alberta
Vanessa Lewis, RD, MHA - BC Home Parenteral & Enteral Nutrition Programs
7:00pm - (Optional) Informal Networking
Open to all
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